Tenacious C

A few weeks ago Celia was very, very sick.  Each day, as her cough progressed and her lungs filled with more fluid, we prepared to say goodbye.  Among other things, LOTS of other things, we worried that she wouldn't be able to be at her walk.  But she is resilient, and even though she does not have the life we meant to give her at birth, she is a master of good living.  And she's not done yet.

 Kisses from Vanessa and getting to know new cousin Zane must be part of what Cel's sticking around for.

Celia reminds us what life is about.  It may be one of the primary reasons so many of you have grown to love her.  It's certainly one of the things we love most about her, the way that - even though she doesn't have much to work with - she lives well, and teaches us to do the same.  It's one of the things we hope to keep with us after she's gone.
We cannot wrest control of Celie's fate from her defective genetic code.  She will die.  We know that we can't help her.  But we would like to help children like her, and you ensure that we do not have to do that alone.  You share with us your sincere interest in our effort to eradicate the disease, accompanied by your capacity to give without expecting much in return.  Thank you, in advance, for helping the OSU MICU's campaign to raise awareness and critical funds to fight Batten Disease.  All of you help us create the Celia who will live in our minds forever.  

Sunday, November 21 -- 1:00 pm

Antrim Park --  Worthington

$5.00 per walker, 100% of proceeds to BDSRA for infantile research

additional $5.00 for BDSRA shirt, if interested

If we were able to be there Sunday, we'd hug each of you.

JEB