To the extent that anything about Batten Disease feels normal, we squandered most of the afternoon on the floor with books and with each other, and the reading and the poking all felt fairly typical.
I couldn't love these two any more than I do.
A few of you have asked about contributing to Celia's Walk. Checks can be made to BDSRA, and sent to 292 Crandall Dr, Worthington OH 43085 c/o Sara Zeller. If you'd prefer to make a donation directly to BDSRA, please make note of Celia's Walk so it can be counted in the MICU's total and applied toward infantile research.
JEB
Wednesday, November 17, 2010
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