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Celia is lucky to have so many friends who give voice to the fight against Batten Disease. We are fortunate to know so many of you will, to... -
Life doesn’t always feel like smooth sailing along heaven's highways, but more like daily grinding through a maze of back alleys elsewhe... -
I asked the question half in jest and whole in earnest. Could things get worse? Yesterday was hard. The kind of hard that made my limbs f... -
I just want to wrap him, and his sister, in my arms like the long-hoped-for gifts that they are.
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This year was different. It was the first Canadian fishing trip since Celia's diagnosis that I didn't feel the need to escape. I lo... -
We're home today. Although all of us haven't been together at once yet, when the baby moved from abstract to tangible so did the i... -
There is none of the stale “I can’t believe my baby is going to school.” None of that, which I find particularly irritating and only slight... -
He's been doing this for a couple weeks, each step and each day more confident than the last. Grandparents (who have seen him walk!) hav...
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Almost.
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