FamilyColumbus

  • Subscribe to our RSS feed.
  • Twitter
  • StumbleUpon
  • Reddit
  • Facebook
  • Digg

Thursday, July 7, 2011

Sea to Shining Sea

Posted on 8:45 PM by Unknown
While Celia's legs have atrophied, his have pounded pavement from the Pacific to the Atlantic.  It's taken four months and eleven pairs of shoes, but Noah Coughlan has traversed nearly 2,500 miles, and has raised tremendous awareness for Batten Disease along the way.
There is no acceptable, arbitrary "level" of awareness.  Somewhere there is a scientist with the ability to undo the damage genes inflict on children with Batten Disease.  Everywhere there are people who may not have heard of Batten, people who, given the chance, might be inspired to join the battle against it.  Although Awareness Weekend has come and gone, Batten is something we cannot stop thinking about and talking about until there is a cure.  And Noah has spent months doing just that on behalf of families like our own.

Noah serves as dramatic proof that people are capable of accomplishing feats that begin as mere dreams, and his run provides hope that grace may someday be shed on our dream for a cure.
Follow his finish this weekend!
JEB
Email ThisBlogThis!Share to XShare to FacebookShare to Pinterest
Posted in | No comments
Newer Post Older Post Home

0 comments:

Post a Comment

Subscribe to: Post Comments (Atom)

Popular Posts

  • Untucked
    There are round blue snowflake stickers making a "path” up the wooden stairs.   I know, Mama, stickers are only for paper please. Next ...
  • every beautiful thing
    Tuck's current favorite game is rhyming. Yesterday after his pediatrician asked him what he liked about school and what his favorite ani...
  • #latergrams
    1.  knee high 2.  Gpa Rod does bedtime books 3. post-storm playground clean-up 4. ten summers ago 5. quiet baby toes 6. summer sky 7.  new b...
  • Life Savor
    Tuck swallows life in big, breathless gulps, downs it until he's so full his seams burst and it spills into the rest of us. His supply o...
  • This Minute
    There've been a few minutes like this one over the past several days, and they make my heart incandescently happy.  JEB
  • A whole lot of almost two
    Recently, Andy asked what Tuck’s first word was.  We both struggled to recall.  With Celia I kept meticulous track of things like teeth an...
  • Wear That You Care
    The bodies attached to these legs love Celia every day.  But today, wearing jeans gives them the chance to bring awareness to her disease, w...
  • when listening feels kind of exhausting
    I stepped outside this morning, having sent the boys ahead while I strapped on my own shoes, and caught Tucker, head raised to the sky, yell...
  • Want some?
    As an aside: We've updated the Current Fundraisers tab at the top of the page -- if you're local, please consider sav ing May 31st ...
  • Overheard
    Tucker:  Grandpa Rod came back (from Florida) just like Mama always comes back. Andy:  Someday Celia will go away and won’t come back. T:  W...

Blog Archive

  • ►  2013 (118)
    • ►  September (8)
    • ►  August (13)
    • ►  July (15)
    • ►  June (11)
    • ►  May (16)
    • ►  April (15)
    • ►  March (14)
    • ►  February (14)
    • ►  January (12)
  • ►  2012 (178)
    • ►  December (12)
    • ►  November (15)
    • ►  October (18)
    • ►  September (14)
    • ►  August (14)
    • ►  July (14)
    • ►  June (14)
    • ►  May (17)
    • ►  April (16)
    • ►  March (14)
    • ►  February (16)
    • ►  January (14)
  • ▼  2011 (176)
    • ►  December (16)
    • ►  November (15)
    • ►  October (16)
    • ►  September (17)
    • ►  August (14)
    • ▼  July (13)
      • The hardest things
      • Lift
      • the Doing
      • Song For You
      • A Dog and his Boy
      • Dressed
      • O"fish"ally
      • While I Watched
      • By degrees
      • In Park
      • Sea to Shining Sea
      • Bump
      • Proud to Be
    • ►  June (17)
    • ►  May (14)
    • ►  April (13)
    • ►  March (16)
    • ►  February (14)
    • ►  January (11)
  • ►  2010 (28)
    • ►  December (17)
    • ►  November (11)
Powered by Blogger.

About Me

Unknown
View my complete profile