FamilyColumbus

  • Subscribe to our RSS feed.
  • Twitter
  • StumbleUpon
  • Reddit
  • Facebook
  • Digg

Thursday, May 26, 2011

Awareness

Posted on 8:42 AM by Unknown
Post Edit: We think maybe weather warnings trumped the Hospice special last week.  We haven't heard from NCH PR about a possible rescheduled time, but will share info as we know it...

Channel 6, ABC, filmed a segment at our house last month, focused on pediatric hospice care, with a promise to mention Batten Disease.  The piece is supposed to air during tonight's 5pm broadcast, if you're local and interested in watching.  We'll share the clip here too, as soon as it's available.
J&A
Email ThisBlogThis!Share to XShare to FacebookShare to Pinterest
Posted in | No comments
Newer Post Older Post Home

0 comments:

Post a Comment

Subscribe to: Post Comments (Atom)

Popular Posts

  • Untucked
    There are round blue snowflake stickers making a "path” up the wooden stairs.   I know, Mama, stickers are only for paper please. Next ...
  • every beautiful thing
    Tuck's current favorite game is rhyming. Yesterday after his pediatrician asked him what he liked about school and what his favorite ani...
  • #latergrams
    1.  knee high 2.  Gpa Rod does bedtime books 3. post-storm playground clean-up 4. ten summers ago 5. quiet baby toes 6. summer sky 7.  new b...
  • Life Savor
    Tuck swallows life in big, breathless gulps, downs it until he's so full his seams burst and it spills into the rest of us. His supply o...
  • This Minute
    There've been a few minutes like this one over the past several days, and they make my heart incandescently happy.  JEB
  • A whole lot of almost two
    Recently, Andy asked what Tuck’s first word was.  We both struggled to recall.  With Celia I kept meticulous track of things like teeth an...
  • Wear That You Care
    The bodies attached to these legs love Celia every day.  But today, wearing jeans gives them the chance to bring awareness to her disease, w...
  • when listening feels kind of exhausting
    I stepped outside this morning, having sent the boys ahead while I strapped on my own shoes, and caught Tucker, head raised to the sky, yell...
  • Want some?
    As an aside: We've updated the Current Fundraisers tab at the top of the page -- if you're local, please consider sav ing May 31st ...
  • Overheard
    Tucker:  Grandpa Rod came back (from Florida) just like Mama always comes back. Andy:  Someday Celia will go away and won’t come back. T:  W...

Blog Archive

  • ►  2013 (118)
    • ►  September (8)
    • ►  August (13)
    • ►  July (15)
    • ►  June (11)
    • ►  May (16)
    • ►  April (15)
    • ►  March (14)
    • ►  February (14)
    • ►  January (12)
  • ►  2012 (178)
    • ►  December (12)
    • ►  November (15)
    • ►  October (18)
    • ►  September (14)
    • ►  August (14)
    • ►  July (14)
    • ►  June (14)
    • ►  May (17)
    • ►  April (16)
    • ►  March (14)
    • ►  February (16)
    • ►  January (14)
  • ▼  2011 (176)
    • ►  December (16)
    • ►  November (15)
    • ►  October (16)
    • ►  September (17)
    • ►  August (14)
    • ►  July (13)
    • ►  June (17)
    • ▼  May (14)
      • Right Track
      • Celia Collection
      • Awareness
      • Take Me
      • Open House
      • Poppy's
      • Dream Come Blue
      • My Baby
      • Big Top
      • Update: Hospice
      • Not Much/Much
      • Under Control
      • Figments
      • May Flowers
    • ►  April (13)
    • ►  March (16)
    • ►  February (14)
    • ►  January (11)
  • ►  2010 (28)
    • ►  December (17)
    • ►  November (11)
Powered by Blogger.

About Me

Unknown
View my complete profile